Bringing the World’s Neuroblastoma Experts Directly to the Families Who Need Them

The International Neuroblastoma Webinar Series, halfway through 2026

Neuroblastoma is rare, and the people who understand it best are spread across a limited number of centers around the world. For most families, that knowledge has always been hard to reach. Two years ago, we set out to close that distance. Every month, we bring one of the world’s leading experts into the same room as the families living with this disease, and we keep that room open to anyone, anywhere.

By now, this is something families count on. The community is here, the format is set, and the first half of 2026 was about doing the work: getting clear, current information to the people who need it, and connecting the researchers moving this field forward with the families whose lives depend on it.

The people at the front of the research, speaking to families directly

Across six webinars this year, six of the world’s leading neuroblastoma specialists gave their time to this community, from six institutions across four countries:

Dr. Daniel Morgenstern, The Hospital for Sick Children (SickKids), Toronto, on what we now understand about relapse
Dr. Rochelle Bagatell, Children’s Hospital of Philadelphia, on the latest from the Children’s Oncology Group
Dr. Wei Wei, Memorial Sloan Kettering Cancer Center, on the trials underway at MSK
Dr. Gudrun Schleiermacher, Institut Curie, Paris, on the hope behind liquid biopsy
Dr. Giselle Saulnier Sholler, Penn State and Beat Childhood Cancer, on the Beat Childhood Cancer trial network
Dr. Lucas Moreno, Vall d’Hebron, Barcelona, and president of SIOPEN, on the trials moving forward across Europe

Look closely and you see something bigger than six talks. These are the major networks driving neuroblastoma research, in North America and in Europe, reporting their progress in one place, to the same global audience. The families in that room are hearing the state of the field directly from the people shaping it, at the same time as everyone else. That is rare, and it matters.

Reaching the people who can benefit

None of this is about numbers for their own sake. Every number here is a family or a clinician who found information they needed.

This year, more than 900 people signed up from 45 countries. Half were parents and families; the rest were clinicians, researchers, advocacy leaders, and industry partners, the full range of people working on this disease. More than 300 joined the sessions live, and the recordings added over 1,600 viewers on top of that, reaching close to 2,000 people in just the first half of this year. For a disease this rare, reaching this far means the right information is now getting to places it never used to.

And this year is one chapter in a longer story. Since the series began, more than 2,500 people have signed up from 57 countries. More than 1,100 have joined a session live, and the recordings have been watched over 4,000 times, reaching more than 5,000 people in all, live and on demand. What started as an idea has become a place the neuroblastoma community comes back to, month after month.

The recordings stay free and open, in every timezone, always. For a parent searching at midnight for a clear answer, or a doctor looking for the current thinking, the library is there whenever it is needed.

The conversation goes both ways

The heart of each webinar is the conversation that follows. This year, families brought 75 questions to the experts, across hours of discussion, on the things that weigh most: why relapse happens and what can be done, which trials are open and who can join them, what liquid biopsy could mean, and how care differs from one country to the next. The experts stayed to answer them, in plain language, one question at a time.

The work continues

Two years in, this community has become a steady bridge between the families living with neuroblastoma and the people working to change its future. That bridge is the point, and it is stronger than ever.

The series continues in August, when Dr. Francesca Del Bufalo of Bambino Gesù Children’s Hospital in Rome joins us to talk about the latest in CAR-T. Wherever in the world you are, we hope you will be there: register to join us.