Privacy Policy

Shir for Life (“SFL,” “we,” “us,” or “our”) is a nonprofit supporting neuroblastoma research, awareness, and family advocacy, including through our Neuroblastoma Day initiative. This Privacy Policy explains how we handle personal information when you use shirforlife.org, sign up for our emails, register for a webinar, make a donation, or participate in our ambassador, pledge, and fundraising programs.

This Policy applies to supporters in the United States, the EEA and UK, California, and Israel. It reflects our obligations under the GDPR, the UK GDPR, the CCPA/CPRA, and Israel’s Protection of Privacy Law.

Information We Collect

We collect information you give us directly and information collected automatically when you use our Site.

  • Information you provide: name, email, phone, mailing address, country, language preference, donation details, ambassador and pledge form responses, webinar registration details, and any messages you send us.
  • Information collected automatically: IP address, browser and device details, pages visited, and engagement data from cookies and similar technologies (including analytics and advertising pixels).
  • Information from our service providers: donation confirmations from our payment processor, email engagement data (opens, clicks, bounces), and webinar attendance data.

We do not require sensitive information to use the Site. The Site is not directed to children under 13 (or under 16 in the EEA/UK). Parents and guardians may sign children up for ambassador and pledge activities.

How We Use Your Information

We use personal information to operate the Site and our programs, process donations and send tax receipts, administer the ambassador and pledge programs, send newsletters and webinar communications you’ve asked for, respond to your messages, measure campaign performance, and meet legal obligations.

For supporters in the EEA/UK, we rely on your consent (for marketing and non-essential cookies), contract (to deliver services you’ve requested), legal obligation, and our legitimate interests in running our charitable mission.

How We Share Information

We do not sell personal information. We share information with trusted service providers who help us run our programs, including:

  • Stripe — donation processing for US and international donors (outside Israel).
  • GetResponse — newsletters, webinar invitations, and automated email sequences.
  • Zoom — webinar hosting and registration/reminder/follow-up emails for registrants.
  • Google — Google Sheets, Apps Script, and Workspace services for ambassador and pledge form data; Google Analytics for Site measurement.
  • WordPress and Elementor — primary website hosting and site builder.
  • Netlify — hosting for campaign hubs and related pages.
  • Meta — Meta Pixel and related advertising and measurement tools across Facebook and Instagram.
  • Zapier — workflow automation between tools such as Google Sheets and GetResponse.

We may also share information with research, advocacy, or fundraising partners with your consent or where reasonably expected, disclose it when required by law or to protect safety, and transfer it as part of a merger or reorganization. We may share aggregated or de-identified data for research and awareness.

Our service providers are based in several countries, including the United States. Where required, we use appropriate safeguards for international data transfers, such as Standard Contractual Clauses.

Your Privacy Rights

Depending on where you live, you may have the right to access, correct, delete, or receive a copy of your personal information; to object to or restrict certain processing; to withdraw consent; and to opt out of marketing or of “sharing” for cross-context behavioral advertising (including via the Global Privacy Control signal). California residents have these rights under the CCPA/CPRA; EEA and UK supporters have them under the GDPR and UK GDPR; Israeli supporters have them under the Protection of Privacy Law.

To exercise any of these rights, email us at [email protected]. We may need to verify your identity before responding. You can unsubscribe from marketing emails anytime using the link in any email. You may also file a complaint with your local data protection authority.

Cookies, Retention, and Security

We use cookies and similar technologies for essential Site functionality, analytics, advertising, and remembering your preferences. Where required by law, we ask for consent before setting non-essential cookies. You can also manage cookies through your browser.

We keep personal information only as long as needed for the purposes described here or as required by tax, accounting, and legal rules. We use reasonable administrative, technical, and physical safeguards to protect your information, though no system is completely secure.

Changes and How to Contact Us

We may update this Policy from time to time. Material changes will be reflected in the “Last updated” date above, with additional notice where appropriate.

Questions or requests? Contact us:

  • Email: [email protected]
  • Mail: Shir for Life, 9 E 37th Street, 6th Floor, New York, NY 10016
  • Web: shirforlife.org
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