The battle against neuroblastoma, the rare and deadly child-killing cancer
By Einat Dado Baralia
The Jerusalem Post
December 5, 2025
When your child is diagnosed with cancer, your world becomes very small. It shrinks to hospital corridors, waiting rooms, and test results. Plans dissolve into a blur of scans and surgeries. For families facing neuroblastoma, a rare and aggressive childhood cancer, this narrow world can also feel impossibly isolated.
I know this world all too well. I am the mother of Shir, a little boy whose neuroblastoma diagnosis turned our family’s life upside down, and the founder of Shir for Life, a nonprofit born from that experience. In those early days, I felt what so many parents feel: that we were fighting alone.
But if you zoom out far enough, you see something else entirely: families, doctors, and scientists on different continents, in different time zones, working on the very same problem at the very same time. Parents in London joining a Zoom support group with parents in Tel Aviv. A child in São Paulo receiving a treatment first tested in a trial that enrolled children from Chicago to Paris. None of these stories is possible without one thing: collaboration.
This is the spirit behind International Neuroblastoma Awareness Day, which Shir for Life helped launch and which is now marked each year on December 5 in more than 50 countries. The day’s theme, “Together We Can,” is more than a slogan—it’s a survival strategy, born from hard lessons about what does and doesn’t work when you’re trying to cure a rare disease.
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